Thyroid and Lllt Cure week 1: CFS Fibro EDS CVS Chronic Migraine

I’m in the pattern of 50 mcg T3 in am and 25 mcg T4 pm; had second lllt treatment yesterday. Today has been a full deep breath of fresh air. Cleaning house for first time in forever. Went grocery shopping and prepping to make dinner. There’s a lot of ‘life backlog’ be prioritized but with brain online it seems no big deal.

Just scheduled third lllt treatment for right before the weekend to make sure my family gets some of this ‘on time’.

I’ve seen various studies online regarding lllt and what piqued my interest were studies mentioned in Dr. Norman Doidge’s book ‘The Brain’s way of Healing’. I’ll be taking notes at upcoming treatments regarding laser type & settings used. This site URL has good recap detail on a clinic’s patients that were helped by low level laser: http://sydneylaserhealthsolutions.com.au/conditions/65-fibromyalgia-cfs

Hoping this cure continues!

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Lllt for EDS CFS Fibro Migraine Metabolic syndrome

I’ve come full circle. End of last year tried low level laser treatment for Fibro muscle spasms and was delighted to find the days after treatment I had MUCH increased energy. I went from a 1-2 on the Cfs activity scale to being so active I thought I could return to work. I organized the kitchen! I made a full bed-sized blanket and started the next! I was also trying several other treatments and lllt was most expensive so have been relying on less expensive options for past months. I have returned to 1-2 on Cfs activity scale so restarted lllt this week at a new location.

This Dr knew exactly what I was talking about concerning the energy boost and said he has another patient with Ehlers and CFS- they started laser treatments on spinal column: first 3x weekly for couple weeks, then twice weekly, weekly, monthly. Patient went traveling for months & months and eventually relapsed, came back for lllt and is now on a monthly maintenance schedule.

So excited I can possibly get my life back and may just need one lllt maintenance appointment monthly. Will post updates.

Medical Medium celery juicing fail on EDS Fibro Cfs CVS Migraine MCAD

/// Note: Here’s what seems to have happened causing the story below— I had a severe iodine deficiency, throwing off metabolism, blood pressure, blood sugar, causing Cfs and migraines. Now that iodine is supplemented I can drink veg juices w/o getting over-alkaline terrible results. Yayhoo! ///

Well. I got through about 3 days of morning celery juicing and became more and more nauseous, migrainey. Eventually remembered to check urine Ph and I was about a 9 for at least past 48 hours. I’d already been low energy but the nausea took things really over the edge.

Last year when I started seeing my latest naturopath, we’d come across the pattern of me being very high alkaline 8.5, 9 on urine Ph strips when I felt most ill. Added thyroid meds (tests came back borderline ‘ok’) and L-Carnitine, keto diet and alkalinity became nonissue. I think when tapering off keto is when I started to feel bit crappy.

Added LDN to my daily meds/supplements which lifted fatigue but that seemed to be completely ineffective past couple weeks. I didn’t take LDN yesterday and today feel like a million bucks. Still have to pace myself but brain is fully online.

Met with ND today and plan is to add LDN back at much reduced amount. It’s completely saved me from shingles outbreaks and did get rid of fatigue when I started– so eager to find a way to make it work. Hopefully the LDN sweet spot will equal brain and body energy with boosted immune system.

For now celery juice is banned from kitchen.

EDS Medical Medium Day 2

— update: this didn’t work for me. If you’re going to try juicing please check your urine Ph first- mine’s often more alkaline than the norm and juicing tips me to further alkaline & feeling much worse —

On second day juicing celery, had a 16oz in the morning and bit more in the evening. Added parsley (supposed to add cilantro but didn’t have handy): bit easier to drink than straight celery. Also read online it’s ok to store fresh veg juice in fridge for up to 3 days if using a canning jar: fill up with liquid til there’s convex bubble of it about to run over, then slap the lid on which should keep out most O2. Messy but trying it incase I’m ever too tired to juice. Which normally would be Every Day but still feeling good. Went out with my family which is a huge deal. Just a movie and wandering through mall to half price book store: big news in my world! Also no snoozing when trying to listen to Medical Medium audiobook. Progress for sure.

Medical medium EDS MCAD Fibro CFS

— update: this didn’t work for me. If you’re going to try juicing please check your urine Ph first- mine’s often more alkaline than the norm and juicing tips me to further alkaline & feeling much worse —

I coincidentally received a strong recommendation to read the book ‘Medical Medium’ within 24 hours of realizing Ehler Danlos syndrome is likely the umbrella over all the bizarre health issues in my family. I fell asleep about 10 times listening to the book on audible but managed to hear ‘Celery Juicing’ loud and clear. Luckily I had both celery and a juicer (well. Not luckily – because I’ve tried every DANG thing under the sun) so made & drank the 16oz celery juice. Planning to continue for 30 days and log. Today also had Berberine in system. Feeling better than yesterday and I guess that’s a good start.

Ldn for ADHD, IBS, Fibromyalgia, Migraine, CFS, MCAD, MCAS

About 6 months ago my brilliant naturopath suggested I research low dose naltrexone or LDN as an optional tool in my healthcare. I gave it a try, and only in hindsight after letting prescription refill linger for 2 months did I realize what a huge positive impact it has had on my health. I restarted taking LDN daily about a month ago and had immediate improved energy, concentration and lessening of food sensitivities. I am attempting to get a prescription for my son (recently diagnosed with inattentive ADHD and MCAD) – it is an uphill battle. There is quite a bit of data online supporting LDN for pediatric chrons, PANDAS and autism behaviors. I am determined to find help for him. Thank goodness for the Internet.

/// Update regarding low dose naltrexone::: the medicine helped in so many ways, my favorite being ending shingles recurrences (10 plus outbreaks last year! Grr) However– since discovering iodine deficiency and supplementing that, I’ve dropped ldn and have even better results. Ldn did bridge the gap! ///

Pediatric mcas / mcad

We’ve been at wits end past several months with eleven year old sons constant tummy troubles. Finally got in to see an allergy specialist that I requested referral to specifically because of seeing mast cell disease mentioned on his website bio. Son was diagnosed with mcad- tentatively as we try out meds and await his serum tryptase results. I wanted to post the prescribed meds because if I had ANY idea of what was safe for an 11 year old I would have already tried this and saved him waiting for months and months. Recommendation was one zyrtec daily and twice a day a 75mg Zantac. He already is taking 100g ketotifen at meals and bedtime. I hadn’t been sending the lunchtime tab to school but doing so now!