I may or may not have ordered T3 meds from another country out of complete desperation. Why is it so hard to get the correct thyroid meds at the correct dosage. Loving the crumbs of Dr. Lowe on the internet & pasting a link. His out of print books on T3 and metabolic syndrome are exorbitantly pricey on eBay/Amazon depending how next days go, may do it.
Today at lllt treatment the doc mentioned a book ‘Superlearning’ which had a profound effect on his life, going from ADHD barely passing high school to implementing certain techniques during college which helped him graduate with a 4.0. My whole happy family (and our extended families) struggle with ADD inattentive type as well as EDS related poor health. I cannot read this book fast enough (wish it was on Audible) but we have a brand new homework & reading-time ritual: “Alexa, play Super Learning music.”
Luckily there are some bedtime music options available as well, also on YouTube. Excited.
I’m making progress on CFS symptoms and have found resolving thyroid issues to be a critical component of feeling better. While both my son and I were feeling subpar last week, it occurred to me to hand him one of the Ph strips I use to check urine- we discovered his was also very abnormally alkaline – around 9 when typical is 6-7 range. Since he was feeling better the next day I exited panic mode and this info has been rolling around the back of my head.
Today I was completing ADHD paperwork for his school’s 504 eval and realized I should include the MCAD diagnosis because so many days were missed this past semester. Looking for the allergist doc with the diagnosis I came across blood pressure readings from sons 2 appointments. Early December when symptoms were terrible (he ran out of Drs office thinking he was going to barf, ended up with diarrhea and then felt ok) – blood pressure was 105/62. I googled 11 year olds BP and this is way low, nearly off charts. THEN, I noticed recent January appointment when he was not even symptomatic had bp of 95/55: way off the charts. Can’t believe they didn’t mention it.
Scrambling for next steps for him. During my overalkaline bout I increased thyroid and took care of business. Hard to find thyroid instruction for kids but I’m on the case.
About 6 months ago my brilliant naturopath suggested I research low dose naltrexone or LDN as an optional tool in my healthcare. I gave it a try, and only in hindsight after letting prescription refill linger for 2 months did I realize what a huge positive impact it has had on my health. I restarted taking LDN daily about a month ago and had immediate improved energy, concentration and lessening of food sensitivities. I am attempting to get a prescription for my son (recently diagnosed with inattentive ADHD and MCAD) – it is an uphill battle. There is quite a bit of data online supporting LDN for pediatric chrons, PANDAS and autism behaviors. I am determined to find help for him. Thank goodness for the Internet.
/// Update regarding low dose naltrexone::: the medicine helped in so many ways, my favorite being ending shingles recurrences (10 plus outbreaks last year! Grr) However– since discovering iodine deficiency and supplementing that, I’ve dropped ldn and have even better results. Ldn did bridge the gap! ///
We’ve been at wits end past several months with eleven year old sons constant tummy troubles. Finally got in to see an allergy specialist that I requested referral to specifically because of seeing mast cell disease mentioned on his website bio. Son was diagnosed with mcad- tentatively as we try out meds and await his serum tryptase results. I wanted to post the prescribed meds because if I had ANY idea of what was safe for an 11 year old I would have already tried this and saved him waiting for months and months. Recommendation was one zyrtec daily and twice a day a 75mg Zantac. He already is taking 100g ketotifen at meals and bedtime. I hadn’t been sending the lunchtime tab to school but doing so now!
Today I took my eight year old son to a naturopath in downtown Seattle in hopes that a breathing method will help with some ADD symptoms (also Finally got a referral to an OT this week after being denied last year because son is in a gifted program. Unacceptable!)
Here’s what we learned. Buteyko breathing can transform kids with ADD symptoms to much reduced or symptom-free, given a few months of dedicated breathing practice. It is also recommended for athletes and asthma patients. Basically if you breathe through your nose you receive 20% more oxygen than mouth breathing. Nose breathing also filters out all the junk in the air, warms or cools air as needed and if done in conjunction with ‘belly’ diaphragm breathing automatically maximizes lung capacity. Mouth breathing is only done with the upper chest so air can’t flow effortlessly to bottom of lungs. If you’re congested from illness or allergies there are some tricks to clear your nasal passages– such as pinch bridge of nose while shaking head and pacing; repeat ad nauseum because the nasal breathing piece is critical. Neti pot was mentioned and I’m hoping we don’t need to add that to morning routine.
My son is a mouth-breather partly due to allergies and food sensitivities (gluten, dairy, dust) and partly genetics. Speech therapy has helped with doing more nose breathing somewhat but it has been an uphill battle absolutely all the way. The Buteyko breathing exercises (google for more!) are supposed to be easier and more engaging while creating similar progress from the inside out. I’ll be testing this as well since 20% increased oxygen seems not bad as possible remedy to chronic migraines.
Between now and next breathing appointment we are to create free accounts and log in daily at breathinglog.com to keep tabs on all the breath activity. Fingers Xd on that.