EDS Medical Medium Day 2

— update: this didn’t work for me. If you’re going to try juicing please check your urine Ph first- mine’s often more alkaline than the norm and juicing tips me to further alkaline & feeling much worse —

On second day juicing celery, had a 16oz in the morning and bit more in the evening. Added parsley (supposed to add cilantro but didn’t have handy): bit easier to drink than straight celery. Also read online it’s ok to store fresh veg juice in fridge for up to 3 days if using a canning jar: fill up with liquid til there’s convex bubble of it about to run over, then slap the lid on which should keep out most O2. Messy but trying it incase I’m ever too tired to juice. Which normally would be Every Day but still feeling good. Went out with my family which is a huge deal. Just a movie and wandering through mall to half price book store: big news in my world! Also no snoozing when trying to listen to Medical Medium audiobook. Progress for sure.

Advertisements

Medical medium EDS MCAD Fibro CFS

— update: this didn’t work for me. If you’re going to try juicing please check your urine Ph first- mine’s often more alkaline than the norm and juicing tips me to further alkaline & feeling much worse —

I coincidentally received a strong recommendation to read the book ‘Medical Medium’ within 24 hours of realizing Ehler Danlos syndrome is likely the umbrella over all the bizarre health issues in my family. I fell asleep about 10 times listening to the book on audible but managed to hear ‘Celery Juicing’ loud and clear. Luckily I had both celery and a juicer (well. Not luckily – because I’ve tried every DANG thing under the sun) so made & drank the 16oz celery juice. Planning to continue for 30 days and log. Today also had Berberine in system. Feeling better than yesterday and I guess that’s a good start.

Ehlers danlos syndrome

I’ve been digging out of low energy hole, and it has been one step forward two steps back. My massage therapist recently suggested looking into Ehlers Danlos syndrome as a possible explanation for all of my health anomalies – and my sons. Luckily I came across the RCCX blog and have some concrete next steps. I’m already taking LDN, ordered Berberine which will arrive tomorrow and have a Drs appointment scheduled to get better understanding of micrododing prednisone to help get out of a downward spiral. Hopeful for improvement.

— note: what helped most was eventually increasing thyroid meds! I was already taking t3 twice daily. Added old t4 out of desperation and felt SO much better. I’m still working out best pattern for me by how I’m feeling. Thyroid tests were all ‘ok’ per Docs- though 2 tests were lowest number or below range! Best info found to navigate this is online/YouTube by Steven Fowkes, or on site stopthethyroidmadness.

Onwards.

Ldn for ADHD, IBS, Fibromyalgia, Migraine, CFS, MCAD, MCAS

About 6 months ago my brilliant naturopath suggested I research low dose naltrexone or LDN as an optional tool in my healthcare. I gave it a try, and only in hindsight after letting prescription refill linger for 2 months did I realize what a huge positive impact it has had on my health. I restarted taking LDN daily about a month ago and had immediate improved energy, concentration and lessening of food sensitivities. I am attempting to get a prescription for my son (recently diagnosed with inattentive ADHD and MCAD) – it is an uphill battle. There is quite a bit of data online supporting LDN for pediatric chrons, PANDAS and autism behaviors. I am determined to find help for him. Thank goodness for the Internet.

/// Update regarding low dose naltrexone::: the medicine helped in so many ways, my favorite being ending shingles recurrences (10 plus outbreaks last year! Grr) However– since discovering iodine deficiency and supplementing that, I’ve dropped ldn and have even better results. Ldn did bridge the gap! ///

Mast Cell Activation Syndrome / Disease, aka MCAS aka MCAD aka Years of Chronic Migraine

It’s been a couple years since the first post, and the entire time I’ve been looking for solutions to 2 critical heal issues: chronic daily migraine & fibro pain (mine) and allergy & speech impediment issues (son). Thankfully, there are recently GREAT things that have happened healthwise for both of us!

Focus for now is on recapping chronic daily migraine recovery. Key points, in reverse order of finding them but in correct order of importance!:

  • Mast Cell Activation syndrome / disease. Also known as MCAS or MCAD. Googling the heck out of this and scouring everything – found a regimen recommended by Dr. Afrin in his book “Never bet against Occam”. This is keeping 24×7 migraines away: Twice daily: 1 Zyrtec, 2 Pepcid. Low histamine diet. Digestion itself triggers a histamine mast attack in your body – so if consuming more than 100 calories take Ketotifen (prescription) just prior to meal.
  • Over time became allergic/sensitive to everything. First dairy. Then gluten. Over time ANY food other than zucchini would trigger a reaction resulting in migraine. This is a sign of mast Cell disease! Being on the correct meds for mast Cell has resulted in not only no migraines but very few food allergies. Gluten and beef are the only foods that will still trigger migraine even in small amounts.
  • Low iron/ anemia detected no matter how iron-rich my diet & supplements. This combined with migraine and other inflammatory responses should have been a much earlier pointer to Mast Cell disease and will test to confirm it is now resolving.

More soon !

Buteyko Breathing

Today I took my eight year old son to a naturopath in downtown Seattle in hopes that a breathing method will help with some ADD symptoms (also Finally got a referral to an OT this week after being denied last year because son is in a gifted program. Unacceptable!)

Here’s what we learned. Buteyko breathing can transform kids with ADD symptoms to much reduced or symptom-free, given a few months of dedicated breathing practice. It is also recommended for athletes and asthma patients. Basically if you breathe through your nose you receive 20% more oxygen than mouth breathing. Nose breathing also filters out all the junk in the air, warms or cools air as needed and if done in conjunction with ‘belly’ diaphragm breathing automatically maximizes lung capacity. Mouth breathing is only done with the upper chest so air can’t flow effortlessly to bottom of lungs. If you’re congested from illness or allergies there are some tricks to clear your nasal passages– such as pinch bridge of nose while shaking head and pacing; repeat ad nauseum because the nasal breathing piece is critical. Neti pot was mentioned and I’m hoping we don’t need to add that to morning routine.

My son is a mouth-breather partly due to allergies and food sensitivities (gluten, dairy, dust) and partly genetics. Speech therapy has helped with doing more nose breathing somewhat but it has been an uphill battle absolutely all the way. The Buteyko breathing exercises (google for more!) are supposed to be easier and more engaging while creating similar progress from the inside out. I’ll be testing this as well since 20% increased oxygen seems not bad as possible remedy to chronic migraines.

Between now and next breathing appointment we are to create free accounts and log in daily at breathinglog.com to keep tabs on all the breath activity. Fingers Xd on that.