Ehlers danlos syndrome

I’ve been digging out of low energy hole, and it has been one step forward two steps back. My massage therapist recently suggested looking into Ehlers Danlos syndrome as a possible explanation for all of my health anomalies – and my sons. Luckily I came across the RCCX blog and have some concrete next steps. I’m already taking LDN, ordered Berberine which will arrive tomorrow and have a Drs appointment scheduled to get better understanding of micrododing prednisone to help get out of a downward spiral. Hopeful for improvement.

— note: what helped most was eventually increasing thyroid meds! I was already taking t3 twice daily. Added old t4 out of desperation and felt SO much better. I’m still working out best pattern for me by how I’m feeling. Thyroid tests were all ‘ok’ per Docs- though 2 tests were lowest number or below range! Best info found to navigate this is online/YouTube by Steven Fowkes, or on site stopthethyroidmadness.


Giving keto another try: Day 1.

Way back in my 24.7 years of chronic daily migraine, I tried keto and it worked – no more migraines! – but it felt completely unsustainable: insomnia, hormones went wacky with estrogen dominance, and more insomnia. I’ve recently found some online tips for women and am trying it again in hopes it will calm down hit flashes which seem linked to hypoglycemia. Plan is to add bit of fiber & protein with each mainly fat meal and lots of colorful veg.

Last night was trying to prep myself with mct oil on veg: immediate insomnia. My sleep tracker says I got 2 hours of sleep, despite staying in bed longer to try to catch up. Aaaaaargh!!!! No MCT past lunch, no problem.


Hot Coffee Plus:

1 C coffee

1T collagen

1T Mct oil

1 square unsweetened chocolate

1/2 t Maca

3 drops stevia