I wear earplugs more often than not. It’s hard getting the ‘just right’ combo of fitting comfortably, blocking most noises & hearing conversation when I try to. We’re on a road trip and it’s been a challenge keeping track of which pocket is the temporary home for a variety of ear plugs when trying to hear my son over road noise. We agreed to stop for snacks n gas and I’d wait to put the plugs back in til we were back in the car listening to podcasts or audible blasting through the car stereo. My main goal was to use the restroom but the lines were stunning so I found my son browsing the chips, paid and went back towards restrooms with a plan to use the family/handicapped room if the door if it was open. I am definitely handicapped just usually don’t look it. The door was open so I went for it, still smiling to myself because the cashier ringing up my son’s chips seemed especially kind. Maybe it’s a northwest thing. As I shut the bathroom door I noticed my new super short haircut highlighted the giant neon orange carrot of an earplug still in my left ear. Niiiice look! I’m sure the cashier was trying to figure out if I was a danger to myself or others. Slipped the carrot into its pocket and tried to straighten my crazy car hair. Onward!
I feel like such an idiot. I’ve lost the better part of the last ten years of my life due to constant migraines and crushing fatigue. Thyroid meds gave a short lived boost (like so many other things; well approx 6 other things) and then back to pretty darn terrible. During the latest blood draw to check thyroid levels (maybe my 10th ever) the naturopath added a check for iodine levels. I was at 25% of recommended target levels. My ND recommended kelp snacks which seemed to not cut it so of course I googled. Been supplementing with iodine caps/tablets (favorite has tyrosine added) and the first day hours after taking first capsule, I cleaned my entire kitchen for the first time in, ever. That was about three weeks ago. I’ve since, among other things, taken my son camping twice. Last trip with his ADHD friend. Many other milestones. Excited for the possibility to get to live some normal life rather than limping along feeling like rip van winkle as the world passes by. Fingers Xd.
I’d hired a life coach who did not know what to do with my low functioning CFS/me mast cell self. It was super frustrating and expensive. Since discovering she was trained by Martha Beck, Google entered into the picture and many podcasts, books, PDFs have helped me start sorting out my life now that I’m feeling better.
I LOVE this blog post about using spoon theory to also notice what gives you a spoon, even if it’s a tiny espresso size.
Made a big pain/nausea connection last night. My son and I have many food sensitivities. Mine seemed to start early thirties but he was born with them. He’s been having much less pain and nausea since starting Mast cell activation disorder treatment, but I’ll still check in a few times a day to ask his pain/nausea level. He hasn’t been above a three in either (down from 7/8s) since starting MCAD Tx.
Was googling my Fibro muscle pain during mild insomnia last night and saw Dr Myhill references to lactic acid/d-lactate. BINGO. We have been trying to sneak in some dairy now and then to ensure good calcium levels and no more broken bones. Turns out dairy causes quick path to lactic acid overload in folks with mito challenges. In neck/shoulder for me due to old scar tissue from work injury; tightness in that location used to lead to chronic migraine til I had insane amount of Sarapin/B12 trigger point shots to get the spasms to ‘let go’. For my son, dairy seems to be correlation between rising from 0 to 3 in both stomach pain and nausea, as well as random muscle aches in legs and shoulders, and very noticeable fatigue. Daiya fake cheese, we are coming back to you!
Report on food allergies/EDS connection: https://www.medpagetoday.com/meetingcoverage/aaaai/31471
Dr Myhill link: http://www.drmyhill.co.uk/wiki/Fermentation_in_the_gut_and_CFS