We live in Washington state and the air quality has been terrible lately… my son usually only has post-illness asthma but yesterday needed rescue inhaler about 10 times. We’ve been through the recovery drill before and added some meds to help stabilize him. My breathing has been fine but I’ve noticed increased anxiety and brain fog. It’s Really bad today and eating stress French fries which won’t help matters… Hot bath n lullabies here I come.
I wear earplugs more often than not. It’s hard getting the ‘just right’ combo of fitting comfortably, blocking most noises & hearing conversation when I try to. We’re on a road trip and it’s been a challenge keeping track of which pocket is the temporary home for a variety of ear plugs when trying to hear my son over road noise. We agreed to stop for snacks n gas and I’d wait to put the plugs back in til we were back in the car listening to podcasts or audible blasting through the car stereo. My main goal was to use the restroom but the lines were stunning so I found my son browsing the chips, paid and went back towards restrooms with a plan to use the family/handicapped room if the door if it was open. I am definitely handicapped just usually don’t look it. The door was open so I went for it, still smiling to myself because the cashier ringing up my son’s chips seemed especially kind. Maybe it’s a northwest thing. As I shut the bathroom door I noticed my new super short haircut highlighted the giant neon orange carrot of an earplug still in my left ear. Niiiice look! I’m sure the cashier was trying to figure out if I was a danger to myself or others. Slipped the carrot into its pocket and tried to straighten my crazy car hair. Onward!
I feel like such an idiot. I’ve lost the better part of the last ten years of my life due to constant migraines and crushing fatigue. Thyroid meds gave a short lived boost (like so many other things; well approx 6 other things) and then back to pretty darn terrible. During the latest blood draw to check thyroid levels (maybe my 10th ever) the naturopath added a check for iodine levels. I was at 25% of recommended target levels. My ND recommended kelp snacks which seemed to not cut it so of course I googled. Been supplementing with iodine caps/tablets (favorite has tyrosine added) and the first day hours after taking first capsule, I cleaned my entire kitchen for the first time in, ever. That was about three weeks ago. I’ve since, among other things, taken my son camping twice. Last trip with his ADHD friend. Many other milestones. Excited for the possibility to get to live some normal life rather than limping along feeling like rip van winkle as the world passes by. Fingers Xd.
I’d hired a life coach who did not know what to do with my low functioning CFS/me mast cell self. It was super frustrating and expensive. Since discovering she was trained by Martha Beck, Google entered into the picture and many podcasts, books, PDFs have helped me start sorting out my life now that I’m feeling better.
I LOVE this blog post about using spoon theory to also notice what gives you a spoon, even if it’s a tiny espresso size.
I may or may not have ordered T3 meds from another country out of complete desperation. Why is it so hard to get the correct thyroid meds at the correct dosage. Loving the crumbs of Dr. Lowe on the internet & pasting a link. His out of print books on T3 and metabolic syndrome are exorbitantly pricey on eBay/Amazon depending how next days go, may do it.
Today at lllt treatment the doc mentioned a book ‘Superlearning’ which had a profound effect on his life, going from ADHD barely passing high school to implementing certain techniques during college which helped him graduate with a 4.0. My whole happy family (and our extended families) struggle with ADD inattentive type as well as EDS related poor health. I cannot read this book fast enough (wish it was on Audible) but we have a brand new homework & reading-time ritual: “Alexa, play Super Learning music.”
Luckily there are some bedtime music options available as well, also on YouTube. Excited.
I’m making progress on CFS symptoms and have found resolving thyroid issues to be a critical component of feeling better. While both my son and I were feeling subpar last week, it occurred to me to hand him one of the Ph strips I use to check urine- we discovered his was also very abnormally alkaline – around 9 when typical is 6-7 range. Since he was feeling better the next day I exited panic mode and this info has been rolling around the back of my head.
Today I was completing ADHD paperwork for his school’s 504 eval and realized I should include the MCAD diagnosis because so many days were missed this past semester. Looking for the allergist doc with the diagnosis I came across blood pressure readings from sons 2 appointments. Early December when symptoms were terrible (he ran out of Drs office thinking he was going to barf, ended up with diarrhea and then felt ok) – blood pressure was 105/62. I googled 11 year olds BP and this is way low, nearly off charts. THEN, I noticed recent January appointment when he was not even symptomatic had bp of 95/55: way off the charts. Can’t believe they didn’t mention it.
Scrambling for next steps for him. During my overalkaline bout I increased thyroid and took care of business. Hard to find thyroid instruction for kids but I’m on the case.