I’ve come full circle. End of last year tried low level laser treatment for Fibro muscle spasms and was delighted to find the days after treatment I had MUCH increased energy. I went from a 1-2 on the Cfs activity scale to being so active I thought I could return to work. I organized the kitchen! I made a full bed-sized blanket and started the next! I was also trying several other treatments and lllt was most expensive so have been relying on less expensive options for past months. I have returned to 1-2 on Cfs activity scale so restarted lllt this week at a new location.
This Dr knew exactly what I was talking about concerning the energy boost and said he has another patient with Ehlers and CFS- they started laser treatments on spinal column: first 3x weekly for couple weeks, then twice weekly, weekly, monthly. Patient went traveling for months & months and eventually relapsed, came back for lllt and is now on a monthly maintenance schedule.
So excited I can possibly get my life back and may just need one lllt maintenance appointment monthly. Will post updates.
Treading Water 
Oh to have the energy back even for a short time. exciting development.
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Thank you! I’m sorry you can relate to the zero energy state; unfortunately my next update on lllt won’t be as exciting- seems to not be doing much anymore. Looking for what else I may have been supplementing with around the last time lllt seemed to give loads of energy. Fingers Xd for clues asap.
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