Mast Cell Activation Syndrome / Disease, aka MCAS aka MCAD aka Years of Chronic Migraine

It’s been a couple years since the first post, and the entire time I’ve been looking for solutions to 2 critical heal issues: chronic daily migraine & fibro pain (mine) and allergy & speech impediment issues (son). Thankfully, there are recently GREAT things that have happened healthwise for both of us!

Focus for now is on recapping chronic daily migraine recovery. Key points, in reverse order of finding them but in correct order of importance!:

  • Mast Cell Activation syndrome / disease. Also known as MCAS or MCAD. Googling the heck out of this and scouring everything – found a regimen recommended by Dr. Afrin in his book “Never bet against Occam”. This is keeping 24×7 migraines away: Twice daily: 1 Zyrtec, 2 Pepcid. Low histamine diet. Digestion itself triggers a histamine mast attack in your body – so if consuming more than 100 calories take Ketotifen (prescription) just prior to meal.
  • Over time became allergic/sensitive to everything. First dairy. Then gluten. Over time ANY food other than zucchini would trigger a reaction resulting in migraine. This is a sign of mast Cell disease! Being on the correct meds for mast Cell has resulted in not only no migraines but very few food allergies. Gluten and beef are the only foods that will still trigger migraine even in small amounts.
  • Low iron/ anemia detected no matter how iron-rich my diet & supplements. This combined with migraine and other inflammatory responses should have been a much earlier pointer to Mast Cell disease and will test to confirm it is now resolving.

More soon !

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s