Myofunctional Therapy

Time to dive into the great results my son has been having regarding turning around a habit of lisp for S and Z.

He has tried many different therapies over the past few years including seeing in-person a speech language therapist or SLT and doing at-home exercises provided by school speech therapist (apparently to be deemed in need of therapy a student has to not only have the issue, but an have an embarrassment about the issue as well; so not okay). We’ve finally found the golden ticket in some at-home skyping to learn some myofunctional exercises.

After the third week of myofunctional practice (approx 5-15 minutes per day, increasing incrementally each week) – spontaneous correct S and Z sounds coming out of his mouth, ALL the time. I know it’s not entirely spontaneous as he is making the effort, however Every Single S and Z: Spot on. Amazing. We had done even more practice per day on the other SLT and speech therapist exercises to NO avail.

I am so blown away by this progress. He was able to make correct sounds within the first week. Currently on session 6 and have signed up for 12 total. The sessions and week numbers are no longer in sync because we took some vacations in the middle. Will update towards the end with anything new we’ve learned.

Mast Cell Management

I planned on writing weekly but I must get down on virtual paper : don’t forget the ketotifen!!!! Whenever consuming food over 100 calories within an hour- take ketotifen first or as soon into the eating as possible. This is for a meal or any snack over 100 calories, unless it’s liquid, or near liquid like yogurt, kefir, smoothie. I forgot to do this for last nights evening meal, and paid for it by eventually getting start of migraine today, probably 18 hour build up.

There are a couple types of mast Cell disease, a reactive anaphylactic type and a smoldering constant reaction. The latter sounds better and is less life threatening in terms of fatalities but it can destroy lives, for example by triggering constant migraines.

Ketotifen: it’s what’s for dinner.

Mast Cell Activation Syndrome / Disease, aka MCAS aka MCAD aka Years of Chronic Migraine

It’s been a couple years since the first post, and the entire time I’ve been looking for solutions to 2 critical heal issues: chronic daily migraine & fibro pain (mine) and allergy & speech impediment issues (son). Thankfully, there are recently GREAT things that have happened healthwise for both of us!

Focus for now is on recapping chronic daily migraine recovery. Key points, in reverse order of finding them but in correct order of importance!:

  • Mast Cell Activation syndrome / disease. Also known as MCAS or MCAD. Googling the heck out of this and scouring everything – found a regimen recommended by Dr. Afrin in his book “Never bet against Occam”. This is keeping 24×7 migraines away: Twice daily: 1 Zyrtec, 2 Pepcid. Low histamine diet. Digestion itself triggers a histamine mast attack in your body – so if consuming more than 100 calories take Ketotifen (prescription) just prior to meal.
  • Over time became allergic/sensitive to everything. First dairy. Then gluten. Over time ANY food other than zucchini would trigger a reaction resulting in migraine. This is a sign of mast Cell disease! Being on the correct meds for mast Cell has resulted in not only no migraines but very few food allergies. Gluten and beef are the only foods that will still trigger migraine even in small amounts.
  • Low iron/ anemia detected no matter how iron-rich my diet & supplements. This combined with migraine and other inflammatory responses should have been a much earlier pointer to Mast Cell disease and will test to confirm it is now resolving.

More soon !